Last Monday, my phone rings–it’s the coordinator from the University of South Florida (where my trial takes place). I let it go to voicemail, because honestly I was a bit nervous of why she would be calling. ‘Are they going to drop some bomb that I need to discontinue the trial I’m in?!’ When I… Continue reading New news
So, I told you guys I wouldn’t keep you hanging for long in between posts aaaaand clearly I failed to keep that promise. Sorry😔 I wanted to wait until I received the results from my trial study, so I could write about that. It took longer than I intended, but I got them! For some… Continue reading The verdict is…
I’ve tried to write this post 4 different times at 4 different locations from 4 different angles and I am still at a loss for a topic. All I kept doing was staring at the little curser blinking or repeatedly hitting the back space every time I attempted to write. I have a million things… Continue reading Smorgasbord
It sure has been a while since I’ve last blogged–I feel I have so much to fill y’all in on! First and foremost, Happy Mother’s Day (a little late) to all you Mama’s and Mama’s-to-be! The title ‘Mom’ is the best title in the world! Am I right, or am I right?! Hopefully, all you… Continue reading Across the road
On December 20th, 1987, I made my grand entrance into this world. I was born and raised in the Gateway to the West. Home of the Cardinals, Blues and Rams. The city of toasted ravioli, provel cheese, gooey butter cake, delicious Imo’s pizza…and the infamous question of: “Where did you go to high school?” Trust… Continue reading Once upon a time
Whelp, I took the plunge and started a blog! I am so excited to start sharing my stories of how much my life has changed being a Mommy while dealing with a debilitating disease–Friedreich’s Ataxia. Whether you can relate or not, I hope to instill my ups and downs, the wonderful joys of Motherhood and… Continue reading A Mama with a Walker
I’m sure there are some of you scratching your head wondering what this Friedreich’s Ataxia (FA) even is and why do I need a walker? Well, let me enlighten you… Text book interpretation: FA is a debilitating, life-shortening, degenerative neuro-muscular disorder. About 1 in 50,000 people in the US are diagnosed with FA. FA patients… Continue reading What is this F.A. you speak of?
I get a lot of looks and questions when people see me pushing around a walker or riding in a wheelchair. “What happened to you?” “Were you in an accident?” “Did you have surgery?” “Did you break something?”… I’m still trying to come up with a crazy and fun answer instead of the boring “No,… Continue reading The impossible is not possible