“Everyone has something. Disability literally doesn’t matter, it matters who you are and how you affect other people.”-Kyle Bryant I just heard this from another FA’er, Kyle, the other day and he nailed it.🙌🏼 Many people pre-judge someone based on what they have and not who they are. How a person reacts to their disability, the… Continue reading Research, trials and studies, oh my!
So, I’m kind of coming to a road block on what my next topic should be and I’ve come to the conclusion that I want YOU to determine my next post. I would like to do a Q&A type post. You ask all the questions and I’ll answer the best that I can. Just ask… Continue reading Let’s make this YOUR post
Unfortunately, I just got the news that the results from the trial are still not able to be shared. 😩 I asked the coordinators about the results, and come to find out that because of the phase 2 trial they’re now conducting, no participant from phase 1 can have any knowledge of what they were… Continue reading Short, sweet and to the point(s)
Welcome back, strangers! I dropped the ball, again, on blogging on a timely manner. Whoops! But now that the hustle and bustle of the holidays are behind us, I can finally sit down and form a logical sentence. As much as I LOVE Christmas, the spirit and all the goodness that goes with it, December… Continue reading I’m baaaaack
I can’t believe I’m already packing up for my third trip down to Tampa. I leave tomorrow and return Wednesday (day before Thanksgiving). I just got back last week–I unpack, do laundry, then have to pack again! At least I’m just about half way through. My last trip will be December 6th-12th. Then I will… Continue reading Ataxia vs. Mom
RT001 is underway! If you have no idea what I’m talking about, then be sure to click over to my previous post ‘New News’ to be brought up to speed. November 9th: I’m flying to Tampa for the second time for this new trial and I couldn’t be more excited and nervous at the same… Continue reading It has [almost] begun
Last Monday, my phone rings–it’s the coordinator from the University of South Florida (where my trial takes place). I let it go to voicemail, because honestly I was a bit nervous of why she would be calling. ‘Are they going to drop some bomb that I need to discontinue the trial I’m in?!’ When I… Continue reading New news