I’ve been to Tampa 3 time the past few months for the drug study RTA 408 Phase 2 Extension. I’ve traveled down there so many times the past 6 years, I know the ins and outs of travel with my eyes closed.🙈 My friend came with me in April and my mom the other 2… Continue reading Suit Up—More Goodness. More Travel.
A magical vaca in the books! For Eli’s spring break, we (my cousin, Elise, her hubs, David, their daughter, Birdie, Eli and myself) took a trip to Disneyland! This vacation was planned months in advance and I was beyond fortunate to have David and Elise do a majority of the planning. I had never been… Continue reading Magic
Second trip was the state that has my heart; my all time happy place – Florida🌴☀️🌊 My mom and I are December birthdays, so with all our frequent Flyer miles built up on Southwest, we were able to do a 5 day getaway Birthday celebration strictly using our mile points on our flights! We chose… Continue reading Birthday x 2 Getaway
Ellen and me adventured to Hermann, Missouri for my first OFFICIAL travel rendezvous. As I stated in the prior post, my plan is to embark on some traveling and gather all the info I can to share how I made it happen from my wheelchair. Maybe you can relate or maybe you cannot. Maybe you’ll… Continue reading German Hermann
I am thrilled to write this post to share the ins & outs on one of my dear friend’s new career and life path. Ellen O’Keefe (Meriage) has taken on a new nursing adventure and I am so proud of her accomplishments for becoming a Health and Wellness Nurse Coach, Board Certified. And her brand… Continue reading New Year. New Ellen. New You.
January: I finished up PT, OT and speech therapy that started November/December 2017. With FA being progressive, it’s always beneficial to continue PT, OT and speech each year to keep yourself on the up and up. February: I started a new research trial at my home away from home – Tampa, FL. I had a… Continue reading My 2018 synopsis
Since the BIG 3-0 is only days away and the end of the year is quickly approaching, I want to leave my 20s and 2017 with everything I started writing to share with you now! I started many posts and topics, but never finished🤦🏻♀️ Shocker! Writing, for me, comes in waves; I get the flames… Continue reading Five Months Crammed Into Words & Pics & Vids
Remember my post a year ago about asking for questions to answer on my next blog post? Well, 365 days later, 6 posts ago and some juicy content, here it is! Three awesome questions: 1. Do you still see people (old friends, distant family) who aren’t aware of your current health situation? Or do most… Continue reading Raw Material. Caution.
My plate has been overly full lately. Trying to write a post has felt merely impossible. Once I get a topic rolling or an idea in my head, something comes about to change my direction. So let’s see if I can stay on track… First off, as some of you may have already seen on… Continue reading The Mods of Life
These past two months have not been even close to my favorites. I’ve had some ‘Debbie’ moments and lost track of my good path. I was losing a part of myself to anger, sadness, bitterness, coldness…pretty sure I was leaving a sour taste in people. I was stuck in a place where I lost sight… Continue reading Negative Nancy vs. Positive Polly
Balancing ataxia and Mom life 