I went down to Tampa, USF, for my 5 month check up of Reata 408 Phase 2—extension (MOXie) October 10th and heard the most amazing news…This drug is moving onto phase 3 and has high hopes to be FDA approved!!! An FA drug has never made it past its final phase with positive results—Reata’s MOXie… Continue reading MOXieeeeeee
I went to a local gas station the other day and because they’re OG, they pump gas for all their customers; super convenient for an FAer! Anyway, I hand over my debit card and instruct him on the type of gas and how much; and he gave me a kind of look like the look… Continue reading Assumptions
What is it like having a disability? I often wonder that question not only for myself, but for others. Every variable matters in answering that question. What disability are you living with? What’s the severity? Are you independent/dependent? Do you have family and/or friend support? Are you in a romantic relationship or single? Do you… Continue reading What is it like to have a disability?
I’ve been to Tampa 3 time the past few months for the drug study RTA 408 Phase 2 Extension. I’ve traveled down there so many times the past 6 years, I know the ins and outs of travel with my eyes closed.🙈 My friend came with me in April and my mom the other 2… Continue reading Suit Up—More Goodness. More Travel.
A magical vaca in the books! For Eli’s spring break, we (my cousin, Elise, her hubs, David, their daughter, Birdie, Eli and myself) took a trip to Disneyland! This vacation was planned months in advance and I was beyond fortunate to have David and Elise do a majority of the planning. I had never been… Continue reading Magic
Second trip was the state that has my heart; my all time happy place – Florida🌴☀️🌊 My mom and I are December birthdays, so with all our frequent Flyer miles built up on Southwest, we were able to do a 5 day getaway Birthday celebration strictly using our mile points on our flights! We chose… Continue reading Birthday x 2 Getaway
Ellen and me adventured to Hermann, Missouri for my first OFFICIAL travel rendezvous. As I stated in the prior post, my plan is to embark on some traveling and gather all the info I can to share how I made it happen from my wheelchair. Maybe you can relate or maybe you cannot. Maybe you’ll… Continue reading German Hermann