My 2018 synopsis

January: I finished up PT, OT and speech therapy that started November/December 2017. With FA being progressive, it’s always beneficial to continue PT, OT and speech each year to keep yourself on the up and up.

February: I started a new research trial at my home away from home – Tampa, FL. I had a total of 3 visits before voluntarily withdrawing from the study.

March: March 19th, I officially opted out of trial. Probs sign up for more when the timing allows.

April: April 13th-15th, I went to Oklahoma to attend a FA fundraiser called Cure FA Soirée – wonderful event! I also got to visit with FAmily (Other FA peeps and their “real” family)

April 27th-30th I went to Atlanta, Georgia to attend a FA symposium (an entire day dedicated to learning about FA research, FA doctors, role leaders, fundraising…) I also had the opportunity to stay with some FAmily and visit with even more.

May: nothing FA related. Eli started summer break towards the end of the month, which meant lots of planning to fulfill our summer adventures!

June: Eli turns 6!!!

Pain starts shooting in my foot (not sure why; of course, first thought is FA), but seems far fetched when speaking to my doc about it.

July: I got an MRI and X-ray of spine. Results show no concerns for scoliosis – wahoo🙌🏻 but mild/moderate bulging discs on my lumbar and sciatica – not so wahoo. It’s “possible” these bulging discs are causing pain to the nerve that travels to my foot. I’ve heard “yes, no, maybe” for this being the culprit🤷🏻‍♀️

August: Eli and I say goodbye to summer break with a wonderful trip to Milwaukee to visit my cousin, her hubs and daughter❤️

August 14th my babes starts 1st grade. brb; crying 😭

End of August I introduce massage therapy to relieve some back issues. Stretch, continue to work with my personal trainer and exercise my legs and feet to ease shooting pain.

September: my primary suggests I have ‘plantar fasciitis’; it’s one of the most causes of heel pain. It involves inflammation of a thick band of tissue that runs across the bottom of your foot and connects your heel bone to your toes (plantar fascia). I have high arches, which affect the way weight is distributed when standing and put added stress on the plantar fascia. This is totally common in FA and is an easy fix with exercise and possible ‘Dr. Sholl’ shoe inserts.

This could be the only reason why I’m having foot pain, or addition to. Who knows🤷🏻‍♀️ but in the mean time, I’ll be starting PT next week – which will hopefully be all I need to get this back, back😉

Some more fun during our summer…


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